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Beyond Remission: How Marriage and Family Therapists Support Oncology Survivorship

 

The completion of active cancer treatment is often associated with anticipated relief for most individuals and families. Appointments are spaced out, side effects subside, and crisis-related language is eased. However, for many survivors and their loved ones, this phase is characterized by less finality and more ambiguity. Although treatment may have ended, the psychological, relational, and identity impacts of cancer can persist (Kolsteren et al., 2022). Survivorship is not a return to life before cancer; instead, it is a shift to a new relational terrain. The entire family system faces the challenges of reorganization, renegotiation, and meaning-making.


Marriage and family therapists (MFTs) are well-positioned to address the needs of individuals and families during this stage of care. From the perspective of systems and medical family therapy, oncology survivorship is not considered an individual adaptation, but a relational process constructed through illness narratives, changing roles, fear of recurrence, and continued medical system contact. As the healthcare system increasingly emphasizes survivorship as an essential stage of the cancer journey, MFTs are poised to be significant contributors to this field.

Survivorship as a systemic transition

Cancer treatment frequently reorganizes families around the struggle to survive (Christensen & Carlsen, 2021). Roles may become more defined by what needs to be done, communication may become more focused on logistics and symptoms, and expression of emotion may be limited in the interests of just getting through. When treatment ends, families are often expected to return to their old patterns without recognition or guidance about how much those patterns have been altered (Emery et al., 2022). Survivorship, therefore, is a systemic transition, not a destination.

MFTs have been trained to evaluate symptomatic patterns and intervene at the interactional level rather than target individual symptoms.

Survivorship is now more broadly understood at the national level as a complex experience of physical late effects, psychological distress, social role changes, and medical uncertainty. As the transition may expose fissures in family relationships that were obscured by the more salient evidence of illness, survivors may feel pressured to be grateful or strong, caregivers may be challenged by their need to continue watching so vigilantly, and other family members may have different beliefs about how much cancer should continue to affect day-to-day living. From a systemic perspective, these symptoms are not indications of pathology, but rather manifestations of the family system’s struggle to reorganize. MFTs have been trained to evaluate symptomatic patterns and intervene at the interactional level rather than target individual symptoms (Rajaei, 2021).

Fear of recurrence as a relational process

Fear of cancer recurrence (FCR) is one of the most prevalent concerns among cancer survivors, and it remains prevalent long after treatment is over (Simard et al., 2019). Although FCR is often understood as an individual, anxiety-related phenomenon, evidence is building for the relational nature of this fear. Partners and caregivers may share, or hold even greater fear, and efforts to manage this fear affect communication patterns within couples and families (Lebel et al., 2018).

FCR typically presents in clinical work less directly. For example, a family may avoid discussing medical issues with each other in a bid to protect each other, or they may repeatedly reassure each other in a way that only increases the level of anxiety within the relationship. From a systemic perspective, the therapist can examine who in the family holds what fears, who takes on what responsibility for monitoring bodily changes, and so on. Fear can be given a voice or silenced in different ways within the family. Such a reframing of FCR as a systemic issue can reduce blame and move the family towards a shared coping strategy (Mardadni et al., 2025).

Role renegotiation after treatment

Caregiving roles can become fixed during treatment out of necessity. Partners, parents, or adult children may take on a significant role in managing the survivor’s medical treatment and daily functioning (Cetin, 2022). These roles often do not reverse automatically once treatment is completed. Survivors may have difficulty assuming control again, and caregivers may feel anxious when no longer monitoring behaviors that became routine.

Renegotiating can be even more difficult in the presence of the often unspoken or denied fears regarding safety, trust in body, and fear of loss. There is potential for families to become “stuck” in overprotection or resentment without discussion. MFTs are well-trained to help with these transitions by assisting families in creating expectations, reframing available supports, and negotiating new boundaries that can allow for separateness and connectedness (Butler et al., 2023).

Intimacy, identity, and connection in survivorship

Sexuality and intimacy are aspects of survivorship in which people can experience common problems (Walker et al., 2019). This may be due to physical changes, pain, fatigue, and body image issues, which affect sexual function or sexual and emotional intimacy. Psychological distress and posttraumatic stress symptoms can also affect the connection with self and others. Survivorship care practice guidelines recommend that sexual health and relational functioning be addressed as fundamental to quality of life.

From a systemic perspective, problems with intimacy are not merely individual dysfunctions, but couple-level adaptations to the change induced by illness. MFTs can help couples construct new narratives around intimacy that are more congruent with their current realities than with an idealized vision of “returning to normal” (Rajaei, 2021). Emotionally focused and relational approaches have been shown to enhance relationship satisfaction and emotional connection in couples where one or both partners are cancer survivors (Traa et al., 2015).

Meaning-making and the reconstruction of family narratives

Survivorship can beget existential questions about who we are and what we are to do and be. Survivors may have a hard time assimilating the experience of cancer into their identity; family members may have different ideas about how the family may or may not want to remember the illness or move past it (Rashidi et al., 2020). The family members may be struggling with each other over how best to recognize or make meaning of the illness, with some members wanting to close the chapter on cancer and others feeling like the experience must be ever-present to be remembered.

MFTs have training in guiding shared meaning-making efforts so that families can hold two truths at once. Gratitude for the survivorship experience can coexist with grieving what was lost. Guiding the family in co-constructing a narrative of the cancer experience so that it can be assimilated into the family story, while not overpowering other aspects of the future, is an intervention in relational resilience and coherence.

The role of medical family therapy in survivorship care

As MFTs have a specific focus on using a biopsychosocial lens and integrating with healthcare systems (McDaniel et al., 2014), survivorship offers a key opportunity for MFTs to connect relational work with ongoing medical care. As survivors may continue to have follow-up and medical care with an oncology team, primary care provider, or specialty clinic, family dynamics may play an important role in adherence, symptom reporting, and medical decision-making.

MFTs may collaborate with medical teams in several ways, including providing relational assessments, supporting patient-provider communication, and advocating for the adoption of family-centered survivorship models. Teamwork models also align with broader calls for psychosocial integration across the cancer continuum (American Society of Clinical Oncology [ASCO], 2022).

Conclusion

Survivorship is more than extending time. It’s about reuniting after cancer changes bodies, relationships, and expectations. The systemic orientation of MFTs uniquely positions them to view survivorship as an inherently relational process that demands explicit attention, flexibility, and meaning-making. Systemic work on fear of recurrence, role renegotiation, intimacy, and family narrative provides MFTs with the foundation for expert knowledge in survivorship care and a stronger relational voice within medical systems. As survivorship care continues to evolve, MFTs have the potential to be powerful interdisciplinary partners not only in individual recovery but in the health of couples and families beyond treatment.

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Zahra Muse, MS, is a clinician and researcher whose work centers on culturally grounded behavioral health, trauma, and family systems within underserved communities. Her training includes participation in multiple research labs and initiatives, such as the CoREAL Lab, studies examining burnout among American imams, and research addressing gender-based oppression in Muslim communities. Muse has developed experience in qualitative coding, codebook construction, and manuscript development for studies focused on cultural identity, emotion regulation, and interpersonal stress among minority and immigrant populations. She has also served as a reviewer for the Journal of Family Systems and Health, evaluating family-centered research with attention to methodological rigor and theoretical integration. Across her work, Muse’s scholarly interests have consistently emphasized health psychology, trauma recovery, and culturally responsive family-based interventions.

American Society of Clinical Oncology. (2022). Integrating psychosocial care into routine cancer care. Journal of Clinical Oncology, 40(16), 1800-1812. https://doi.org/10.1200/JCO.21.02524

Butler, J. A., Herzberg, G., & Miller, R. L. (2023). Integral Psychedelic Therapy. Taylor & Francis.

Cetin, N. (2022). Examining the role of post-treatment family support in pediatric and adolescent cancer survivors: A systematic review. Journal of Adolescent and Young Adult Oncology, 12(1), 9-18. https://doi.org/10.1089/jayao.2021.0179

Christensen, S. R., & Carlsen, L. T. (2021). From well‐known to changed everyday family life in families with childhood cancer: A grounded theory of disrupted family dynamic. Psycho-Oncology, 31(2), 282-289. https://doi.org/10.1002/pon.5809

Emery, J., Butow, P., Lai-Kwon, J., Nekhlyudov, L., Rynderman, M., & Jefford, M. (2022). Management of common clinical problems experienced by survivors of cancer. The Lancet, 399(10334), 1537-1550. https://doi.org/10.1016/s0140-6736(22)00242-2

Kolsteren, E. E. M., Deuning-Smit, E., Chu, A. K., van der Hoeven, Y. C. W., Prins, J. B., van der Graaf, W. T. A., van Herpen, C. M. L., van Oort, I. M., Lebel, S., Thewes, B., Kwakkenbos, L., & Custers, J. A. E. (2022). Psychosocial aspects of living long term with advanced cancer and ongoing systemic treatment: A scoping review. Cancers, 14(16), 3889. https://doi.org/10.3390/cancers14163889

Lebel, S., Ozakinci, G., Humphris, G., Thewes, B., Prins, J., Dinkel, A., & Butow, P. (2018). From normal response to clinical problem: Definition and clinical features of fear of cancer recurrence. Supportive Care in Cancer, 26(11), 3265–3274. https://doi.org/10.1007/s00520-018-4452-0

Mardadni, A., Maleki, M., Hanifi, N., Turunen, H., & Vaismoradi, M. (2025). Coping strategies for fear of cancer recurrence among breast cancer survivors: A systematic review and thematic synthesis of qualitative studies. Supportive Care in Cancer, 33(6), 1–15. https://doi.org/10.1007/s00520-025-09503-9

McDaniel, S. H., Campbell, T. L., Hepworth, J., & Lorenz, A. (2014). Family-oriented primary care (2nd ed.). Springer.

National Comprehensive Cancer Network. (2023). NCCN clinical practice guidelines in oncology: Survivorship. https://www.nccn.org

Rajaei, A. (2021). Couples coping with cancer: Implications of adaptive process and relationship outcomes in recent findings for marriage and family therapists and medical family therapists. The Family Journal, 30(3), 106648072110524. https://doi.org/10.1177/10664807211052487

Rashidi, E., Morda, R., & Karnilowicz, W. (2020). “I will not be defined by this. I’m not going to live like a victim; It is not going to define my life”: Exploring breast cancer survivors’ experiences and sense of self. Qualitative Health Research, 31(2), 349-360. https://doi.org/10.1177/1049732320968069

Simard, S., Thewes, B., Humphris, G., Dixon, M., Hayden, C., Mireskandari, S., & Ozakinci, G. (2019). Fear of cancer recurrence in adult cancer survivors: A systematic review of quantitative studies. Journal of Cancer Survivorship, 13(2), 151-171. https://doi.org/10.1007/s11764-019-00769-8

Traa, M. J., De Vries, J., Bodenmann, G., & Den Oudsten, B. L. (2015). Dyadic coping and relationship functioning in couples coping with cancer: A systematic review. British Journal of Health Psychology, 20(1), 85-114. https://doi.org/10.1111/bjhp.12094

Walker, L. M., Wiebe, E., Turner, J., Driga, A., Andrews-Lepine, E., Ayume, A., Stephen, J., Glaze, S., Booker, R., Doll, C., Phan, T., Brennan, K., & Robinson, J. W. (2019). The oncology and sexuality, intimacy, and survivorship program model: An integrated, multi-disciplinary model of sexual health care within oncology. Journal of Cancer Education, 36(2), 377-385. https://doi.org/10.1007/s13187-019-01641-z

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